Overview of NCRA’s requests to Congress in the Advocacy Now Campaign Support More Accurate, Up to Date Cancer Statistics by backing much needed funding for the Centers for Disease Control and Prevention’s (CDC) Division of Cancer Prevention and Control (DCPC).
While program funding over the years has increased, much more is needed. Currently, an increase does not even keep pace with inflation. NCRA wants Congress to support $ 478.6 million for the DCPC, including $26 million in funding to establish a national Cancer Surveillance Cloud Computing Platform. CDC is working to greatly increase the speed of reporting by creating a national cloud computing platform, with the goal of publishing national data in just 12 months. Real time reporting will give health providers, researchers, and public health officials the data they need to make timelier and better-informed decisions about cancer care, research, and policy. This is what will ultimately save lives.
Next, NCRA is asking Members of Congress to consider co-sponsoring upcoming legislation (the Counting Veterans’ Cancer Act of 2022) that will require that all cancer cases among veterans are reported by the Department of Veterans’ Affairs (VA) to cancer registries. The Counting Veterans Cancer Act will:
The Counting Veterans’ Cancer Act will help ensure all veterans receive the highest quality cancer care they need and deserve. According to 2017 data, approximately 26,500 cancer cases among veterans were not reported to state cancer registries funded through NPCR. Federal law requires the CDC and the National Cancer Institute to collect cancer data for all newly diagnosed cancer cases, but that cannot be achieved due to frequent lack of reporting by VA medical facilities. The Counting Veterans Cancer Act is a common-sense solution to a very fixable problem.
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Cancer registrars are data information specialists who capture a complete history, diagnosis, treatment, and health status for every cancer patient in the U.S. The curated data provides essential information to researchers, healthcare providers, and public health officials to better monitor and advance cancer treatments, conduct research, and improve cancer prevention and screening programs. Learn more about how to become a cancer registrar and how cancer registry data is used to improve public health.
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